Vi har medlemmer som har levd med diagnosene i mange år. De har erfaring og kunnskap om det å leve med sin sykdom. Noen av disse har meldt seg som likepersoner, og gått kurs for å bli godkjente.
Likemenn er flinke til å lytte og utveksle erfaringer med likesinnede. Likepersoner har taushetsplikt. Likepersoner skal ikke diskuterer medisinering o.l.
Det er likepersoner for hver gruppe innenfor Morbus Addison foreningen. Det finnes også likepersoner for pårørende, og egne likepersoner for familier med barn og unge med diagnosen.
Alle som står på listen under likepersoner, er tilgjengelige for alle som ønsker kontakt.
Her finner du litteratur om likemannsordningen/likepersonsordningen:Å være i samme båt – Likepersonsarbeid i funksjonshemmedes organisasjoner Likepersonsarbeid for attføring og arbeid
Sjekk oversikten over alle likepersonene her: https://addison.no/web/vil-du-snakke-med-noen/
Du kan også få opp likepersonene ved å trykke på knappene under:
Addison sykdom Hypofysesvikt Cushing sykdom Judit Voll
Akromegali CAH Henrik Andersen
Komsa Terasse 5
3511 Alta
948 69 555
henrikand97@hotmail.com Astrid Moene
Brånåslia 7
2019 Skedsmokorset
906 11 281
Pårørende Addison :
Åste Øhre
Klipperveien 12
3138 Skallestad
481 89 166
aasteoehre@gmail.com Rolf Huseth
Solbergsgate 7 B
3040 Drammen
906 76 188
CAH : Tone Andersen
Komsa Terasse 5
9511 Alta
991 58 447
toneband11@gmail.com Hypofysesvikt : Konrad A. Spica
Nesgrenda 1
6057 Ellingsøy
spica@online.no Cushing: Siw Bjerknes
Hauglibakken 14
1743 Klavestadhaugen
901 49 575
siwbjerk@gmail.com Akromegali : Det er ingen pårørende for personer med Akromegali! Ønsker du å bli likeperson: kontakt spica@online.no
Familiekontakter
Morbus Addison Forening har de siste årene arbeidet for å bygge et familienettverk for familier som har barn med hypofysesvikt, cah, cushing, akromegali og addison.
Nettverket gir rom for:
Erfaringsutvesling
Familienettverket har en facebookgruppe.
Morbus Addison Forening Kontakttelefon,kl. 11.00-13.00 :94083450
post@addison.no
Kontakt ansvarlig for addison.no og facebooksiden: olespurs@gmail.com
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Morbus Addison Forening