Vi har medlemmer som har levd med diagnosene i mange år. De har erfaring og kunnskap om det å leve med sin sykdom. Noen av disse har meldt seg som likepersoner, og gått kurs for å bli godkjente.
Likepersoner er flinke til å lytte og utveksle erfaringer med likesinnede. Likepersoner har taushetsplikt. Likepersoner skal ikke diskuterer medisinering o.l.
Det er likepersoner for hver gruppe innenfor Morbus Addison forening. Det finnes også likepersoner for pårørende, og egne likepersoner for familier med barn og unge med diagnosen.
Alle som står på listen under likepersoner, er tilgjengelige for alle som ønsker kontakt.
Her finner du litteratur om likepersonsordningen: (merk at likeperson het likemann før)
Å være i samme båt – Likepersonsarbeid i funksjonshemmedes organisasjoner
Likepersonsarbeid for attføring og arbeid
Sjekk oversikten over alle likepersonene her: https://addison.no/web/vil-du-snakke-med-noen/
Morbus Addison Forening har de siste årene arbeidet for å bygge et familienettverk for familier som har barn med hypofysesvikt, cah, cushing, akromegali og addison.
Nettverket gir rom for:
Erfaringsutvesling
Informasjon
Råd
Veiledning
I prosjektet «Sammen for barna våre» har vi utvikle et informasjonsmøte for familien og nettverket rundt barnet. Dette informasjonsmøtet skal holdes på barnets hjemsted av erfarne likemenn og familiekontakter.
Familienettverket har en facebookgruppe.
Morbus Addison Forening
Postboks 11
1594 Våler i Østfold
Kontakttelefon,
Tirsdag og Torsdag kl. 11.00-13.00:
94083450
post@addison.no
Kontakt ansvarlig for addison.no og facebooksiden: olespurs@gmail.com
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